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[ Links Main | Add Link | New | Popular | Top Rated | Random ]

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marrowforums.org  Popular
Description: At marrowforums, patients and their families, friends, and caregivers assist and support each other through discussion and sharing. The diseases are rare, but the patients and those who care about them are not alone!
Added on: 05-Feb-2007 Hits: 25957
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Category: Support Organizations



PNH Patient Information  Popular
Description: From Leeds Teaching Hospital
Added on: 24-Mar-2004 Hits: 7861 Rating: 9.0 (3 Votes)
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Category: What is PNH?



Angel Flight America  Popular
Description: We provide flights of hope and healing by transporting patients and their families in private planes, free of charge, to hospitals for medical treatment.
Added on: 08-Jan-2005 Hits: 7300
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Category: Patient Resources



The PNH Research and Support Foundation  Popular
Description: Approximately 90% of the money raised will be given to the Aplastic Anemia and MDS International Foundation (AA&MDSIF) with the specification that it be restricted to a PNH research fund. The remaining 10% of funds will be used for needy patients to help with disease related expenses not covered by insurance.
Added on: 28-May-2004 Hits: 6090 Rating: 10.0 (2 Votes)
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Category: Donate Now!



PNH Patient Registry 
Description: The PNH Patient Registry is the first, comprehensive, observational, multi-national research initiative documenting clinical and humanistic outcomes in the management of patients with the disease. Sponsored by Alexion Pharmaceuticals.
Added on: 24-Sep-2004 Hits: 4094 Rating: 10.0 (3 Votes)
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Category: Hospitals, Universities & Clinical Trials



AA-PNH Info 
Description: Experiences, Informations and suggestions for people concerned with AA and/or PNH. Integrated forum for exchanges and interactions between concerned. For German-Speakers.
Added on: 23-May-2005 Hits: 3403 Rating: 6.0 (1 Vote)
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Category: Support Organizations



Nate Pickowicz - Tribute to Brittany 
Description: Click on Discography to see the Tribute to Brittany Hageman CD. 50% goes to fund PNH research.
Added on: 03-May-2004 Hits: 3200 Rating: 10.0 (1 Vote)
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Category: Donate Now!



PNH Source 
Description: Informational website sponsored by Alexion
Added on: 05-Feb-2007 Hits: 3130
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Category: Patient Resources



Walk for PNH 
Description: Information on a fundraising walk for PNH to be held in Riverview Florida April 1 2006.
Added on: 21-Apr-2006 Hits: 3036
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Category: Support Organizations



AAMDS 
Description: The Aplastic Anemia & MDS International Foundation is the oldest and largest patient advocate and support organization for aplastic anemia, myelodysplastic syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and other bone marrow diseases, providing life-saving hope, knowledge, and support to hundreds of thousands of patients and their families around the world. 

Added on: 05-Feb-2007 Hits: 2690
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Category: Donate Now!



PNH 
Description: From Memorial Sloan-Kettering Cancer Center
Added on: 30-Oct-2003 Hits: 2609 Rating: 10.0 (1 Vote)
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Category: What is PNH?



Prednisone 
Description: RxList’s information on the steroid Prednisone.
Added on: 15-Nov-2003 Hits: 2293 Rating: 10.0 (1 Vote)
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Category: Medications



Desferal (Deferoxamine) 
Description: RxList’s information on Desferal.
Added on: 15-Nov-2003 Hits: 2164
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Category: Medications



Procrit 
Description: Epoetin alfa. Prescribed treatment that can help treat anemia and associated fatigue.
Added on: 02-Nov-2003 Hits: 2046
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Category: Medications



Flow Cytometric Diagnosis of PNH 
Description: Medical description of flow cytometric diagnosis of PNH
Added on: 19-Sep-2003 Hits: 1851
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Category: Medical Articles



Aplastic Anemia and Myelodysplasia Association of Canada 
Description: Canadian support network for patients, families and medical professionals dealing with aplastic anemia, myelodysplasia, or PNH.
Added on: 19-Oct-2003 Hits: 1813
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Category: Support Organizations



Lovenox 
Description: LOVENOX® is an anticoagulant that is used for the prophylaxis of deep vein thrombosis (blood clots) in patients at risk.
Added on: 19-Oct-2003 Hits: 1769
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Category: Medications



Alison’s website 
Description: Alison's website.
Added on: 30-Oct-2003 Hits: 1722
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Category: Members' Websites



Duke University PNH Clinic 
Description: Duke University's PNH Clinic & PNH Research Committee website
Added on: 19-Sep-2003 Hits: 1695
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Category: Hospitals, Universities & Clinical Trials



Leeds Teaching Hospital 
Description: Click on the PNH Directory menu on the left pane
Added on: 24-Mar-2004 Hits: 1636
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Category: Hospitals, Universities & Clinical Trials



Tim's PNH Page 
Description: Tim's PNH Page.
Added on: 29-Dec-2003 Hits: 1635
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Category: Members' Websites



Sandrine's Website 
Description: Sandrine's website (French).
Added on: 31-Jan-2004 Hits: 1517 Rating: 10.0 (1 Vote)
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Category: Members' Websites



PNHziekte · De zeldzame bloedziekten AA en PNH 
Description: Dutch email support group for aplastic anemia and PNH.
Added on: 30-Oct-2003 Hits: 1507
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Category: Support Organizations



Coumadin 
Description: Anticoagulation therapy with COUMADIN.
Added on: 19-Oct-2003 Hits: 1504
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Category: Medications



Johns Hopkins (Sidney Kimmel Comprehensive Cancer Center) 
Description: John Hopkins, Maryland, USA
Added on: 31-Jan-2004 Hits: 1465
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Category: Hospitals, Universities & Clinical Trials



     
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