Welcome to the website for the PNH (Paroxysmal Nocturnal Hemoglobinuria) support group.
Although there is an abundance of resources on this site, our aim is not to inundate
the reader with medical information, but to provide support and to share the personal
experiences of the members who are afflicted with, or care about someone with this condition.
We are not medical specialists, but due to the rarity of the disease, the combined knowledge
of our 400+ members is a huge benefit to all who join our group. If you have recently been
diagnosed with PNH, or know someone who has, this group is a wonderful source of information.
Our members area has lots of information
available and there is no need to register for an account if you don't want to. Feel free to
read the Frequently Asked Questions, check out the medical terms in the
Glossary, or access medical articles in the Files section. There is also an abundance of
Web Links to other sites with information about PNH.